Mila Clarke is all about getting the word out and the technology on.
As both a self-described "patient advocate for people with diabetes" and "data nerd,” she talks the talk on herblog while walking the walk wearing hercontinuous glucose monitor (CGM).
She knows the value of information and communication in both her own journey and that of each of the many people who look to her for information about living their lives with diabetes.
And she understands the cost of silence.
"My mom died of complications of her type 2 diabetes earlier this year at 53," Clarke said. "She was strong, loving and selfless, never wanting to worry anyone else, always looking out for others. So, she never wanted to talk about her condition.
"I started this advocacy work several years ago, but now I am celebrating her life by spreading the word of self care and good health to as many people as possible."
Thirsting for Knowledge
Clarke knows the importance of having all pertinent information available.
After experiencing a series of troubling medical ailments years ago, she was told she had type 2 diabetes. However, it turned out to be the wrong diagnosis, one that resulted in a less-than-ideal treatment plan.
"My A1c was over 11% (normal being < 5.7; goal for those with diabetes is <7 %), I was told my fasting blood sugar was high and my doctor at the time told me I was type 2, and that I should eat better and exercise more," Clarke said. "What does that even mean without specifics? I was watching my diet and exercising two hours a day at the gym and yet, three months later, my A1c was still at 9% and I was exhausted.”
Hungry for more information, Clarke learned about theFreestyle Libre 14-day system, an innovative CGM that provides real-time glucose readings without fingersticks1, an 8-hour history and a trending arrow, with a sensor that lasts up to two weeks.
However, when she requested the device, her soon-to-be-former doctor said it was more technology than she needed, that she wasn’t being compliant with his lifestyle instructions and that it would be easier to just continue with the fingersticks.
The dissenting and decisive vote was concise and final. "I didn't agree it would be easier," Clarke said.
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